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The New York City Hispanic Dementia Caregiver Research Program

 

 

NHiRP Brochure (PDF)

The New York City Hispanic dementia Caregiver Research Program (NHiRP) is funded by the National Institute on Nursing Research (R01NR014430; 06/01/13-03/30/18). PI: Bakken, Luchsinger[contact], Mittelman). The NHiRP application was submitted under the auspices of NOCEMHD and built on the experience and resources of the center, particularly from the Northern Manhattan Caregiver Intervention Project (NOCIP) (1). The NHiRP is collaboration between the College of Medicine at Columbia University Medical Center (Luchsinger), the School of Nursing at Columbia University Medical Center (Bakken), the department of psychiatry at New York University (Mittelman), the school of Nursing at the University of Florida (Lucero), and the Hebrew Home for the Aged in Riverdale (Teresi, Ramirez). The aims of NHiRP are:

  1. To continue longitudinal follow-up of NOCIP beyond the original 6 month intervention
  2. To create a new registry of Hispanic dementia caregiver in order to learn their socio-demographic characteristics, their caregiving needs, and predictors of health outcomes.
  3. To design technology based interventions in collaboration with caregivers participating in the registry, and to conduct pilot testing of such interventions.

Thus far, we have found that most Hispanic caregivers in New York City are daughters, that have low socio-economic resources, and that the main predictors of depressive symptoms and caregiver burden are dementia severity, caregiver physical health, and satisfaction with social networks (2). We have also found that persons with lower social support are more likely to respond to counseling interventions (3).

All participants in NHiRP have access to caregiver support groups, social workers in the study team, and a manual in English and Spanish with a description of health and other support resources for persons with dementia and their caregivers. The program also conducts intensive outreach activities in the community including talks in English and Spanish and caregiver support groups.

In addition to completing the aims of the NHiRP, our goal is to expand the caregiver research program to the African American population in Northern Manhattan, to study biomarkers and predictors of physical health, and to test the effectiveness of existing and new caregiver interventions in order to improve mental and physical health.

Publications

1. Luchsinger J, Mittelman M, Mejia M, Silver S, Lucero RJ, Ramirez M, Kong J, Teresi JA. The Northern Manhattan Caregiver Intervention Project: a randomised trial testing the effectiveness of a dementia caregiver intervention in Hispanics in New York City. BMJ Open. 2012 Sep 14;2(5). pii: e001941. doi: 10.1136/bmjopen-2012-001941. Print 2012. PubMed PMID: 22983877; PubMed Central PMCID: PMC3467593.

2. Luchsinger JA, Tipiani D, Torres-PatiƱo G, Silver S, Eimicke JP, Ramirez M, Teresi J, Mittelman M. Characteristics and Mental Health of Hispanic Dementia Caregivers in New York City. Am J Alzheimers Dis Other Demen. 2015 Jan 29. pii:1533317514568340. [Epub ahead of print] PubMed PMID: 25635108.

3. Luchsinger JA, Darakjy S, March D, Eimicke JP, Teresi JA, Mittelman M. Social Determinants of Health Moderate Response to a Community-based Intervention to Reduce Depression among Hispanic Caregivers of Persons with Dementia. International Symposium on Minority Health and Health Disparities. National Harbor, MD2014.

 

 

 
 
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